Back in 2021, Long COVID was slowly gaining recognition as a potential outcome of going through COVID-19 infection. However, research into the disease was initially slow to start up, and the scientific papers that were published varied greatly in quality.
At the same time, patients were struggling to get their symptoms taken seriously, and to get care. A phrase often heard was: ‘We don’t know anything about this disease yet!’ However, over time, the amount of published research picked up speed. By the end of 2021, there were already hundreds of publications on Long COVID, detailing incidence, symptomatology, disease severity, and more. Enough to be alarmed about the disease, and more than enough to take it seriously.
We decided that we wanted to help patients in their search for recognition and care, by making a resource that showed how much was already known about their illness. This resource could also be used by researchers looking to do a deep-dive into the most important papers on Long COVID.
We’ve carefully maintained this research library for over three years, and have received many positive responses to it. By now the research library contains over almost 3000 scientific publications on the topic.
There is also a dramatic increase in the amount of Long Covid research and a standardization of the terminology used to describe Long Covid, both of which make accessing new research much easier through existing tools, such as PubMed.
Set up your own alert on PubMed
- Go to https://pubmed.ncbi.nlm.nih.gov/, click login and setup a new account (or login, if you already have one).
- From the above main search site, search using the following phrase:
- On the search results page, right below the search bar in blue, you can click to setup an RSS feed of the results or to create an alert. You can then name the search, request an email update of new results with whatever frequency you’d like. For staying the most up to date, we recommend selecting daily (that means at the maximum you’d get one update per day, but usually it’s just a few times per week), abstract format and send at most 200 items. Save and then you’re good to go!
Are you or is your organization interested in taking over the maintenance of the Long Covid Research Library? Do contact us at mail@researchaidnetworks.org.
